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What'sBatten Disease?

BATTEN DISEASE IS A RARE INHERITED DISORDER OF THE NERVOUS SYSTEM THAT USUALLY PRESENTS IN EARLY CHILDHOOD. SYMPTOMS CAN BE LIKENED TO EPILEPSY, PARKINSONS, ALZHEIMERS, BLINDNESS AND CAUSE PREMATURE DEATH.

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AT PRESENT, THERE ARE NO EFFECTIVE THERAPIES FOR TREATING BATTEN DISEASE.

In 2012/13 Cure Kids funded a pre-clinical study which has proven to be curative for a form of Batten disease and we are working with the research teams to progress this work to the point where human trials can commence.

Significant funds are needed to help make this happen.

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